The parents of Mahendra Ahirwar, who suffered from a rare condition called congenital myopathy which made the muscles in his neck so weak his head would hang, said he had been absolutely fine in the morning.
His mother Sumitra, 36, said he had his lunch on Saturday, lay down to watch TV and at around 3pm passed away.
Dr Rajagopalan Krishnan, who completed the successful surgery to straighten his neck in February this year, said he was left shocked by his sudden death.
.
Mahendra Ahirwar tragically died months after successful neck surgery
He said: "I can only conjecture that a massive cardiac or pulmonary event might have occurred and often there are no premonitory symptoms in such cases.
"I think myopathy and poor chest muscles caught up with him in the end.
"He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities.
"I think myopathy and poor chest muscles caught up with him in the end.
"He was among the bravest children I’ve seen since my return to India and I see the most terrible and neglected deformities.
"I am sure his absence will cause anguish to everyone who was involved in his care, his smile was brighter than the sun after his neck was straightened.'
Today his father Mukesh Ahirwar, 42, and his mother Sumitra spoke of the devastation at their son's death.
Mrs Ahirwar said: "I had so many plans and dreams for him. I wanted him to grow big.
"He dreamt of opening a general store and we were going to help him. His dreams are shattered now.
‘He’d been playing in the morning. Had breakfast, took a shower and took a ride on his wheelchair inside the house. After having lunch, he asked to watch TV.
"I switched on his cartoon, and he coughed twice. He asked me to rub his chest and then tried a third cough but died. I started crying loudly and called his name.
"I ran outside, I kept shouting my son isn’t moving, and a neighbour phoned the doctor. The doctor came within 15 minutes and declared he was dead.
"I fell to the floor and held him tightly. I didn’t want to let him go."
The family cremated Mahendra in a traditional Hindu ceremony surrounded by 25 friends and family, at 9am, India time, on Sunday morning.
Mrs Ahirwar, who has two other sons Lalit, 17, and Surendra, 11, as well as daughter Manisha, 14, who was very close to Mah"He even said: ‘I’m absolutely fine Mum’. His voice echoes in my ear. The way he used to call me. I am devastated. I feel everything is over.His things are scattered everywhere.
"He even said: ‘I’m absolutely fine Mum’. His voice echoes in my ear. The way he used to call me. I am devastated. I feel everything is over.' '
Julie Jones from Liverpool raised £12,000 so Mahendra could have his surgery
Mahendra hit the headlines with his extraordinary condition last year and his story touched the heart of mother of two Julie Jones, from Liverpool, who went on to raise £12,000 for Mahendra to have life changing surgery.
Source: daily mail
"He dreamt of opening a general store and we were going to help him. His dreams are shattered now.
‘He’d been playing in the morning. Had breakfast, took a shower and took a ride on his wheelchair inside the house. After having lunch, he asked to watch TV.
"I switched on his cartoon, and he coughed twice. He asked me to rub his chest and then tried a third cough but died. I started crying loudly and called his name.
"I ran outside, I kept shouting my son isn’t moving, and a neighbour phoned the doctor. The doctor came within 15 minutes and declared he was dead.
"I fell to the floor and held him tightly. I didn’t want to let him go."
The family cremated Mahendra in a traditional Hindu ceremony surrounded by 25 friends and family, at 9am, India time, on Sunday morning.
Mrs Ahirwar, who has two other sons Lalit, 17, and Surendra, 11, as well as daughter Manisha, 14, who was very close to Mah"He even said: ‘I’m absolutely fine Mum’. His voice echoes in my ear. The way he used to call me. I am devastated. I feel everything is over.His things are scattered everywhere.
"He even said: ‘I’m absolutely fine Mum’. His voice echoes in my ear. The way he used to call me. I am devastated. I feel everything is over.' '
Julie Jones from Liverpool raised £12,000 so Mahendra could have his surgery
Mahendra hit the headlines with his extraordinary condition last year and his story touched the heart of mother of two Julie Jones, from Liverpool, who went on to raise £12,000 for Mahendra to have life changing surgery.
Dr Krishnan, from Apollo Hospital, in Delhi, who had worked for the NHS for 15 years before returning to India to help extreme spinal disorders, was amazed by Mahendra’s speedy recovery and had been overjoyed at the way his neck had healed.
Dr Krishnan added: "Mahendra's death is not a complication of the surgery or any other intervention.
"If that was the case, he would have died on the operating table or in ICU, not eight months later.
Dr Krishnan added: "Mahendra's death is not a complication of the surgery or any other intervention.
"If that was the case, he would have died on the operating table or in ICU, not eight months later.
"I think his lifespan was limited irrespective of anything else but at least he had several months of being able to see upright.
"The most common cause of death in congenital myopathy is from cardiopulmonary complications.
"There are so many types of congenital myopathy and many subtypes that it's impossible to identify which one Mahendra had and the prognosis in terms of life expectancy.
"I still can’t believe he is gone and I will miss him greatly."
"The most common cause of death in congenital myopathy is from cardiopulmonary complications.
"There are so many types of congenital myopathy and many subtypes that it's impossible to identify which one Mahendra had and the prognosis in terms of life expectancy.
"I still can’t believe he is gone and I will miss him greatly."
Source: daily mail
沒有留言:
張貼留言